Tuesday, December 25, 2007
Monday, December 17, 2007
Sunday, December 9, 2007
Wednesday, December 5, 2007
Visit #2 with neurologist.
More good Christmas pictures coming this weekend but first an update.
We went to the neuro yesterday, really nice lady and was prior a pediatrician, very tender and soft with him. Sees people out of her home, nice townhouse about 20 blocks from us. No insurance, credit cards or anything but she has a lot of contacts etc. Doesn’t see many patients and doesn’t accept any new ones unless special case so gave us 2 hours which was nice. Gave us some further exercises to do with him and some other suggestions, thinks we just need to get his reflux under control and then he will be ok and this should help with therapy. He tracked ok with her but was too fussy to care the rest of the time. Said that his pupils reacted sluggishly and that eye doctor def important to see. She is going to see him again in 3 months and slated to get another MRI at a year with her. Said she thinks of him just as a one month old so he really is doing all of the things a one month old should be doing. Reviewed the MRI with Dr. Heyer the pediatric neuro-radiologist and also Dr. Heyer took it to the guy who writes the pediatric neuron-radiology text books and they both thought the clefts on the brain were not as big of a deal, it was the hemorrhage more so in the upper right brain that was the cause of the problem than anything. Said brain is very plastic in its abilities to adapt and train itself, just need to keep at it with therapy. Talked to us about another family in the neighborhood who is going through similar things and is going to put us in touch with them. All for the cord blood. As she sees it the biggest thing for him will be motor skills and that some kids with brain injury are able to talk later on but a lot aren’t. Most families are still able to find a way to communicate either via computer or other form with their children though as kids develop some form of higher cognition but just can’t get it out. #2 was very happy that his arms and legs hadn’t become stiff yet or spastic as she called it, said that is one of the key areas for therapy if they start to see that, said that most kids with this level of brain damage have a hard time walking, so to expect that he will have to use a chair or a walker, but as she said walking is over rated in the grand scheme of things, her aim is really cognition improvement.
For the past couple of weeks almost anytime he has been awake he has been agitated or crying so she thinks it is either the reflux and colic or just that signals from the brain to the body are traveling unimpeded, she explained this as usually between your brain and body there is a governor on the senses so they flow to the brain and the brain sometimes can weed some out so we aren’t as sensitive to every gust of wind etc and it might be with him he is just very sensitive to everything. She isn’t sure yet and we will see post reflux stuff.
Said he is at risk for seizures and that they would prefer not to put him on any medication prior to seeing one but there is risk there. Said that we will know when they happen though, we will see slow tremors that we can’t stop and a far off look. Said if we see this we should go to the emergency room but that a person can have a seizure for up to 30 min w/o any further brain damage, most stop by themselves though.
From reviewing the MRI and looking at everything she thinks it is either because of a blood condition which Emilia should be tested for or just random popping of a blood vessel because of an infection or bump or anything, a lot of times impossible to tell. But def to get the blood test.
So today we have the pediatric gastro to check out the reflux and see what we can do for that. I have ordered out a swing and we are getting some good advice from the ACC list on what to do about that, tomorrow pediatrician and then in the next couple of weeks the eye doctor. Duke for cord blood infusion in January as well as an appointment with Dr. Perlman for looking at him just because he was a premie and cardiologist next month as well. So lots of doctors for the little guy but good to be learning.
We went to the neuro yesterday, really nice lady and was prior a pediatrician, very tender and soft with him. Sees people out of her home, nice townhouse about 20 blocks from us. No insurance, credit cards or anything but she has a lot of contacts etc. Doesn’t see many patients and doesn’t accept any new ones unless special case so gave us 2 hours which was nice. Gave us some further exercises to do with him and some other suggestions, thinks we just need to get his reflux under control and then he will be ok and this should help with therapy. He tracked ok with her but was too fussy to care the rest of the time. Said that his pupils reacted sluggishly and that eye doctor def important to see. She is going to see him again in 3 months and slated to get another MRI at a year with her. Said she thinks of him just as a one month old so he really is doing all of the things a one month old should be doing. Reviewed the MRI with Dr. Heyer the pediatric neuro-radiologist and also Dr. Heyer took it to the guy who writes the pediatric neuron-radiology text books and they both thought the clefts on the brain were not as big of a deal, it was the hemorrhage more so in the upper right brain that was the cause of the problem than anything. Said brain is very plastic in its abilities to adapt and train itself, just need to keep at it with therapy. Talked to us about another family in the neighborhood who is going through similar things and is going to put us in touch with them. All for the cord blood. As she sees it the biggest thing for him will be motor skills and that some kids with brain injury are able to talk later on but a lot aren’t. Most families are still able to find a way to communicate either via computer or other form with their children though as kids develop some form of higher cognition but just can’t get it out. #2 was very happy that his arms and legs hadn’t become stiff yet or spastic as she called it, said that is one of the key areas for therapy if they start to see that, said that most kids with this level of brain damage have a hard time walking, so to expect that he will have to use a chair or a walker, but as she said walking is over rated in the grand scheme of things, her aim is really cognition improvement.
For the past couple of weeks almost anytime he has been awake he has been agitated or crying so she thinks it is either the reflux and colic or just that signals from the brain to the body are traveling unimpeded, she explained this as usually between your brain and body there is a governor on the senses so they flow to the brain and the brain sometimes can weed some out so we aren’t as sensitive to every gust of wind etc and it might be with him he is just very sensitive to everything. She isn’t sure yet and we will see post reflux stuff.
Said he is at risk for seizures and that they would prefer not to put him on any medication prior to seeing one but there is risk there. Said that we will know when they happen though, we will see slow tremors that we can’t stop and a far off look. Said if we see this we should go to the emergency room but that a person can have a seizure for up to 30 min w/o any further brain damage, most stop by themselves though.
From reviewing the MRI and looking at everything she thinks it is either because of a blood condition which Emilia should be tested for or just random popping of a blood vessel because of an infection or bump or anything, a lot of times impossible to tell. But def to get the blood test.
So today we have the pediatric gastro to check out the reflux and see what we can do for that. I have ordered out a swing and we are getting some good advice from the ACC list on what to do about that, tomorrow pediatrician and then in the next couple of weeks the eye doctor. Duke for cord blood infusion in January as well as an appointment with Dr. Perlman for looking at him just because he was a premie and cardiologist next month as well. So lots of doctors for the little guy but good to be learning.
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